VOLUNTARY ACC PATIENT SURVEY
The Adrenocortical Cancer Patient Survey has been set up because many ACC survivors and their families have requested more information on what fellow ACC survivors are experiencing. The information you enter will be collected and shared with
others taking the survey, in order to help them better deal with this rare disease. The information in the survey will also help inform future research efforts for ACC. The surveyis detailed and includes questions relating to personal information like health history, but the results will be anonymous. AT NO TIME WILL YOU BE ASKED TO PROVIDE YOUR NAME, IDENTIFYING INFORMATION or CONTACT INFORMATION. Reports available to you and researchers will include only summaries of the data collected and no individual surveys will be available.


General Information

Diagnosis Information

Treatment Information

Drug & Supplement use

Health - Current

Health - Historical & Family

You can also start the survey and finish it later as long as it's within 10 days of starting the survey. Your "cookies" on your PC must be enable to use this feature. Please fill out the survey only ONE time on the Initial Survey.  A quarterly survey may become available in order to collect ongoing patient information.

You can Print the entire survey and your answers after you're finished with the last question.

As the information is collected you can view the reports by requesting a Username and Password at the end of last page of the Survey.

Thanks for participating in this important survey?
 
If you would like to participate in the survey PLEASE CLICK HERE

PLEASE CLICK HERE TO ACCESS THE REPORTS - You must request a Username and Password after completing the Survey to access this page.